2010
| PSA
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| | Jun 15 | in St George's for esophageal pouch. No surgery but urine retention
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| | Jul 13 | Foley catheter removed
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| | Aug 2 | St George's Urology clinic - referred for bone scan
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| | Aug 2 | | 489 μg/L PSA value
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| | Sep 8 | St George's Uro-Oncology clinic - first meeting
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| | Sep 13 | St George's Urology clinic - discharged [from pure urology clinic]
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| | Sep 15 | Bone scan
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| | Sep 22 | St George's Uro-Oncology clinic - metatstatic carcinoma confirmed - stages T3 N1 M1
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| | Sep 22 | | | Cyproterone acetate for about two weeks
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| | Sep 23 | St George's ENT clinic - agree no attempt at surgery
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| | Oct 6 | | | Prostap SR 3.75mg (one month)
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| | Oct 27 | Sign-up for STAMPEDE
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| | Oct 27 | | 11.1
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| | Nov 2 | | | Zoladex 3.6 mg (one month)
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| | Nov 11 | | 5.7
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| | Nov 12 | | | Docetaxel 140mg Prednisolone 5mg twice a day
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| | Dec 1 | Waited two hours for non-administration of Zoladex
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| | Dec 1 | | 4.6
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| | Dec 3 | | | Zoladex 10.8 mg (three months) Docetaxel 140mg *1* Prednisolone 5mg twice a day
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| | Dec 21 | | 3.3
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| | Dec 23 | Had a fall so no chemotherapy | | 3 × 8mg Dexamethasone (pre-op steroids)
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*1* On 2010 Dec 3 in addition to the three medications listed above, I took: 3 × 8mg Dexamethasone (pre-op steroids); winter flu jab; anti-emetic before chemotherapy; glucose drip ditto; saline drip after chemotherapy; Domperidone (anti-emetic) 20mg twice a day for a week - a total of nine different chemicals!
|
2011
| PSA
|
| | Jan 10 | St George's ENT clinic - fall has not broken my nose. Improving air flow can be left to later
|
| | Jan 26 | | 1.4
|
| | Jan 28 | | | 3 × 8mg Dexamethasone Docetaxel 140mg Prednisolone 5mg twice a day
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| | Feb 16 | | 1.4
|
| | Feb 18 | | | Docetaxel 140mg, etc. as Jan 28
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| | Feb 25 | | | Zoladex 10.8 mg (three months)
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| | Mar 9 | | 1.5
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| | Mar 11 | | | Docetaxel 140mg, etc. as Jan 28
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| | Mar 28 | | | Omeprazole 20mg per day
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| | Mar 30 | | 1.4
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| | Apr 1 | | | Docetaxel 140mg, etc. as Jan 28 (last)
|
| | May 12 | | 0.87
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| | May 20 | | | Zoladex 10.8 mg (three months)
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| | May 30 | last Omeprazole - symptoms returned quite quickly
|
| | Jun 27 | Endoscopy at Mayday
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| | Jun 28 | | | Omeprazole 20mg per day
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| | Aug 9 | | | Zoladex 10.8 mg (three months)
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| | Aug 11 | | 0.79
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| | Aug 17 | See Laura Reid at Parkside. Have tried reducing Omeprazole dose to one every three days or so but symptoms return. So daily seems OK.
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| | Sep 25 | | | last Prednisolone (left over from chemotherapy)
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| | Nov 8 | | | Zoladex 10.8 mg (three months)
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| | Nov 9 | | 0.70
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2012
| PSA
|
| | Feb 3 | | 0.99 | Zoladex 10.8 mg
|
| | Feb 23 | Bone scan and, Feb 27, CT scan
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| | Mar 27 | MRI scan
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| | Apr 13 | Ultrasound scan of liver | 0.79
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| | Apr 27 | | | Zoladex 10.8 mg
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| | May 2 | Contrast-enhanced doppler ultrasound scan of liver | 0.95
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| | Jul 9 | | | Zoladex 10.8 mg
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| | Aug 21 | | 0.89
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| | Oct 1 | | | Zoladex 10.8 mg
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| | Nov 19 | | 1.1
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NB. Zoladex implants not recorded hereafter but continued at 12 week intervals
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2013
| PSA
|
| | Feb 14 | | 0.82
|
| | May 13 | Lacquer for nail fungus on feet | Omicur 5%, 2 × 2.5ml
|
| | May 22 | | 0.96 | was told Stampede Trial was over so switch to six monthly visits
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| | Jul 16 | ENT clinic at Mayday
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| | Sep 25 | Facial cellulitis | Flucloxacillin 28 × 500mg
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| | Nov 20 | | 1.4 | back to three month intervals
|
2014
| PSA
|
| | Feb 5 | | 1.3
|
| | Feb 21 | Prescribed on Jul 16 for nasal polyps | | Betamethasone 0.1%, 10ml Prednisolone 42 × 5mg
|
| | Apr 9 | | 1.3
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| | Jul 8 | | 1.2
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| | Oct 1 | | 1.2
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| | Dec 29 | | 2.0
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2015
| PSA
|
| | Jan 28 | Bone scan - no change since 2012 Feb 23 | 2.0
|
| | Apr 01 | | 2.4
|
| | Jul 01 | | 2.3
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| | Oct 07 | | 4.4
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| | Nov 5 | | 3.7
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| | | Bone scan - possible minor progression since 2015 Jan. CT scan - no change whatsoever since 2013
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2016
| PSA
|
| | Feb 04 | | 4.5
|
| | May 05 | | 8.2
|
| | May 26 | Bone scan. No change in bone but thickening of bladder wall detected.
|
| | Jun 10 | CT scan | 5.4
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| | Oct 20 | | 7.6
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| | Nov 24 | | 9.2
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2017
| PSA | Oncology | ENT
|
| | Jan 05 | CT scan: prostate - stable; something in lungs - probably just food particles
|
| | Jan 13 | | 12.8 | projection to 489 - 2021 Mar 23
|
| | Apr 26 | | 9.0 | projection to 489 - 2021 Sep 13
|
| | Aug 02 | | 11.0 | projection to 489 - 2022 Jan 28
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| | Nov 02 | | 13.6 | projection to 489 - 2022 May 01
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| | Nov 13 | Shortness of breath | Salbutamol inhaler 200 × 100μg Prednisolone 30mg × 5 days
|
2018
| PSA
|
| | Feb 07 | | 17.7 | projection to 489 - 2022 Jun 09
|
| | Bicalutamide 10mg per day until further notice
|
| | Feb | Shortness of breath | Relieved at home with Salbutamol
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| | Mar 01 | | | | Spirometry at Parkside
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| | Mar 16 | | | | Saw Tunde Odutoye re pouch
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| | Mar 28 | | 7.6 | projection - restart!
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| | Apr 13 | | | | Barium swallow
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| | May 31 | | | | Tunde Odutoye proposes stapling
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| | Jun 24 | Shortness of breath | St George's A&E
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| | Jun 25 | | | | Amoxicillin 21 × 500mg Budesonide / formoterol fumarate (DuoResp Spiromax) inhaler 120 doses Prednisolone 20mg × 5 days Salbutamol inhaler 200 × 100μg (for stock - still using inhaler from Nov 13)
|
| | Jun 29 | | 6.4 |
|
| | Aug 29 | | | | Pre-op assesment for stapling
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| | Sep 14 | | | | Pre-op treatment for MRSA: Mupirocin 2% - in nose 3 times a day for 5 days Chlorhexidine gluconate 4% in hair and body wash × 5 days
|
| | Sep 19 | | 6.7 | | Endoscopic stapling of pharyngeal pouch - successful
|
| | Sep 21 | | | | Mupirocin and chlorhexidine treatment (as above) to continue
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| | Oct 03 | | 4.8
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| | Dec 11 | | | | Spirometry at Parkside - no change since March
|
2019
| PSA | Oncology | ENT
|
| | Jan 03 | | 4.3 | Testosterone < 0.4
|
| | Jan 09 | | | | BP 120/85; HR 94; SPO2 95%
|
| | Jan 09 | | | saw Clare Livings: prostate fine but breathing problems: chest X-ray
|
| | | | | | Doxycycline 100mg × 7 days Prednisolone 30mg × 7 days
|
| | Apr 04 | | 5.9 |
|
| | May | | | | Prednisolone 10 mg daily (self-prescribed) from here
|
| | Jul 03 | | 7.2 | Testosterone 0.4
|
| | Jul 10 | | | saw Lucy Flanders: scans scheduled
|
| | Jul 26 | | 6.7 | CT scan following MRI scan on Jul 24
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| | Oct 30 | | 8.9 |
|
2020
| PSA | Oncology | ENT
|
| | Jan 02 | | 10.6 |
|
| | Feb 14 | | 12.2 |
|
| | Mar 06 | | | CT scan - thorax, abdomen and pelvis with contrast
|
| | Apr 01 | | | phone consultation with Mehran Afshar - CT scan reports things a bit worse but wait 3 months
|
| | May 12 | | 15.6 | Testosterone undetectable
|
| | May 21 | | | | BP 111/61; HR 75
|
| | May 23 | | | start abiraterone
|
| | Jun 12 | | 15.7 | | BP 124/73; HR 74; 37.3°C
|
| | Jul 10 | | 16.3 | | BP 130/81; HR 91; 37.0°C
|
| | Aug 05 | | 20.0
|
| | Aug 17 | | | Abiraterone abandoned. Start Enzalutamide
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| | Sep 01 | | | CT scan - thorax, abdomen and pelvis with contrast
|
| | Sep 08 | | 10.9 | | BP 98/65; HR 76; 36.7°C (BP, etc. are Sep 18)
|
| | Sep 21 | | 5.3
|
| | Oct 02 | | 5.1
|
| | Oct 30 | | 4.6 | Nov 05 - continue Zoladex and Enzalutamide but can stop Bicalutamide
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