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Click here to return to [http://EditThis.info/cfs/Main_Page Main Page]. [[Page 002]] [[Page 003]] [[Page 004]] [[Page 006]]
 
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Post at M.E. Awareness NZ group on G11 May 2024, re Quality CFS/Long Covid Research, + associated discussion.
 
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Group by M.E. Awareness NZ
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Copyright Colin Tait (2023,2024,2025). [[Main Page]] [[Page 002]] [[Page 003]] [[Page 004]] [[Page 005]]
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M.E. Awareness NZ group
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Private group
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571 members
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About
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A place for people in NZ who are passionate about ME/CFS advocacy and awareness-raising​ to connect and coordinate our efforts
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Private
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Only members can see who's in the group and what they post.
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Visible
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Anyone can find this group.
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New Zealand
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Featured        Facebook
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Bea Ravn
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Top contributor
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If anyone wants to use the occasion of ME Awareness Day to nudge some friends or family to express their support in $$$, here are the donation page links for Anna Brooks' and Warren Tate's research teams, both do good work on ME as well as Long Covid.
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If anyone is aware of others in NZ doing quality(!) research and seeking donations, please add them in the comments
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And of course the patient support organisations are always looking for funds, too
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https://www.pvra.nz/donate
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Bea Ravn
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Author
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If people can't donate they can still support ME without spending any of their own money:
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vote for the MEA (UK organisation that supports patients and, importantly, funds research so benefits us all in the end) in the Movement for Good competition, in… See more
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Time is running out - could you spare us a minute? - The ME Association
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MEASSOCIATION.ORG.UK
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Reply
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Darth Vader. I've been doing Quality Research for 18 yrs, but I'm not seeking Funding at this Stage. Darth Vader/CT, Facebook, Auckland, New Zealand. 9:20 G11 May 2024 (UTC).
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Reply
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Whia Whia
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Top contributor
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Darth Vader when you say Quality Research, what kind of research are you doing?
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Reply
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Darth Vader
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Whia Whia. I've been researching Vitamin D Pulse Therapy for 19 yrs. Most of my research has been the development of an Effective Treatment. It turned out that this was the type of research that was needed to determine what causes CFS/Long Covid, + how to Treat it. See my Website EditThis.info/cfs/Main_Page. I've recently updated it. The 5 month delay in replying to your msg, has been because of Poor Health (CFS). I've started to think about the funds required for a Phase 1 Trial.
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Cln 13:40 B22 Oct 2024 (UTC).
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Copyright Colin Tait (2023,2024,2025). [http://EditThis.info/cfs/Main_Page Main Page] [[Page 002]] [[Page 003]] [[Page 004]] [[Page 006]]
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hrfre
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Current revision as of 16:39, 17 March 2025

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